It’s been more than a month since our fructose malabsorption diagnosis – and while we’ve had some success, we’ve also had some recent difficulty. Our initial wonderful turnaround has been followed by a couple of weeks of questions and more questions. Again, hindsight is a wonderful thing, because during this time it did seem like the foods I had bought contained sugar though I didn’t think they did, while really it’s more likely that her system was backing up and that was causing our issues.
Needless to say, right now she’s asleep next to me on the couch. Her stomach is a little better, she’s a bit more comfortable, but we’re back to a completely basic diet and have eliminated gluten for now. If she’s not better by Monday, the doctor wants to take a look – she may have again developed a bacterial growth and antibiotics may be in order.
I’m just so concerned that she’s losing more weight, but haven’t brought out the scale because I don’t want to alarm her. Our last visit showed she had dropped below 80 pounds, she’s just under 5 foot, and had lost about eight pounds total, so close to ten percent of her body weight really. While we have found a couple of foods that eased her sugar/snack/dessert cravings (diet Jello pudding and Pirate’s Booty!), neither one of them will fatten her up.
If anyone has any ideas for gluten/sugarfree (including HCFS, etc.) desserts or high-calorie meals, I’d love to hear them! Our nutritionist is helpful with what not to eat, but doesn’t have a lot of information in this regard. I’m off now to research “fructose malabsorption” support groups. Wish me luck!!!