After my last post, I did spend a bit of time out online looking for support for my daughter’s new-found fructose malabsorption condition – and success! Not, of course, due to my own abilities in online searching – I consider myself good, but I’m not that good – but instead I had someone read my post and point me in the direction of a group out of Australia. Thank you, Bernadette!
So now you’re reading the blog of a new member of two different fructose groups, as well as a knitting/crocheting group! Who says you can’t do it all? :-)
There’s so much info in the group sites, I know it’s going to take some time to absorb it all (pun intended!), but hope is newfound and for that I am extremely grateful. While I plan to stay on the straight path for the moment, the one with very little messing around in the fructose/glucose matching up, where we try to stay fructose-free except for specific planned excursions and mostly on Friday nights, I know that I am on the road to being educated in this new world we find ourselves in. Yay!
Since my daughter’s onset at the end of September, she’s been in school exactly 1-1/2 days. I hope that tomorrow we finally put an end to that. She got better over Christmas, only to get worse again, but having just performed the underhanded cleanout maneuver (she hates this!) and removing gluten from her diet, certainly we expect her to continue her onward move to a mostly pain-free stomach.
She slept last night, nearly all the night through, and that’s the best sign I’ve had in a long time. Of course, since I’m used to being up and down with her all night, I was up a couple of times, but we can get past this. We can rediscover that night-time is sleep-time!
Here’s to all of you who take sleeping for granted – don’t! Enjoy it! Make it an event! Buy some lavender spray for your pillow, have a nice green tea with honey, lay back with a single chapter of a book, and once you turn off your light: SLEEP! And be grateful…
No comments:
Post a Comment